2002 Reinventing Quality Conference
"Balancing Freedom and Safety: Quality Supports Lead to a Quality Life"
Conference Materials
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Conference Program (379 K) |
Keynote
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Striking the Balance Between Freedom and Protection-Morrissey (243 K)Presenter:Dr. Pat Morrissey, Commissioner of ADD, US Deparment of Health and Human Services |
Workshop Presentations
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The New Freedom Initiative: A New Approach or a New Name? The Federal Perspective on Service Quality-Stanton (231 K)The Department of Health and Human Services, Centers for Medicare and Medicaid Services (CMS) has launched new initiatives to support self-directed services, improve quality, and strengthen system capabilities. What impact will these initiatives have on individuals, providers, and state systems?Presenter: Glenn Stanton, Deputy Director, Disabled and Elderly Health Programs Group, Center for Medicaid and State Operations, CMS |
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Can You Get There from Here?
System Change in Local Agencies-Picha (305 K)
Tim Quinn and Erv Picha are directors of private nonprofit
agencies in Maryland and Indiana respectively who are
leading their organizations through comprehensive system
redesign processes. With the goal of instilling the principles
of self-determination or self direction into the design and
operations of all agency activities, each of these presenters
has addressed a number of challenges in the process of
doing something different."
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Changing Policy, Changing Outcomes-Smith (36 K)
Glenn Stanton and Gary Smith discussed CMS˙s current plans and activities
regarding: (a) the development of a Quality Framework, the recommended
components of a comprehensive quality management program for Medicaid-funded
home and community-based services; and (b) the construct of a survey
to collect baseline information from the states regarding their existing
systems quality assurance/improvement programs and outcomes. |
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Transforming Consumer and Family Expectations Into Quality Measures.-Fox (953 K)A panel of parents and advocates discussed the meaning of quality from the perspective of parents and self-advocates, with a particular focus on the impact of services on those who receive them.Panelists: John Jordan, Minnesota Region 10 Quality Assurance Commission Sue Fox, Institute on Disability, University of New Hampshire Gail Bottoms, Self-Advocate |
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Person-Centered Systems of Support: Report on State Site Visits-Bradley & Taub (359 K)Val Bradley and Sarah Taub from the Human Services Research Institute (HSRI) reviewed the preliminary findings of Reinventing Quality Project team visits to states with exemplary person-centered service delivery systems. This session included reports on site visits to Wyoming, Wisconsin, Connecticut, and Kansas.Presenters: Val Bradley, HSRI Sarah Taub, HSRI |
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OK, You Know About It, What Are You Going to Do About It? Converting Information to Action-Sloyer (361 K)Celia Feinstein, John Sloyer, and Steve Coles will discuss the efforts underway in Pennsylvania to develop a management information system that supports the state˙s quality improvement goals. Although all states have quality assurance systems, it is frequently the case that there is no effective means of converting the information collected into effective actions that result in measurable changes. The presenters will discuss different mechanisms to collect data on quality and effective approaches to putting the information to use.Presenters: Celia Feinstein, Institute on Disabilities, Temple University John Sloyer, Pennsylvania Office of Mental Retardation Steve Coles, Bucks County, Pennsylvania MH/MR Program |
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The Role of Direct Support Professionals (DSPs) in Decision-Making-Taylor (565 K)Every day, support staff and consumers are faced with decisions. Some decisions may seem minor, but can have larger ramifications; others have immediate, serious consequences. How do the respective roles of the consumer and his or her direct support staff change when the person directs the support received? Who has the final say, and who should have the final say, especially if decisions involve potentially dangerous consequences? How can the consumer-DSP relationship be organized in order to ensure the appropriate balance of freedom and safety in decision- making (and what is the appropriate balance?")?Presenters: Marianne Taylor, Human Services Research Institute (HSRI) Levetta Rhodes, Community Learning Centers Kim Zoeller, Community Learning Centers |
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The Family˙s Role in Adult Quality of Life-Golden (139 K)The family of a person with developmental disabilities often has a significant role to play in the large and small decisions he or she makes. Families can have a tremendous impact on quality of life. This presentation focused on ways families can help their relatives achieve their quality of life goals, and considered the roles the family can and should play in the decision-making process that ultimately determines quality of life.Presenters: Ann Turnbull, Beech Center, University of Kansas Jackie Golden, Inclusion Research Institute |
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Coordinating Medical, Health, and Dental Services: A Nibble is Not Enough-Morrow (133 K)Drs. Jill Morrow and Jim Rimmer discussed the effects of low rates of Medicaid reimbursement, access to hospitals and a number of other specific barriers that make it difficult for many people with developmental disabilities and their families to readily access the specific health and wellness services they need. This session discussed the issues, the problems and potential solutions.Presenters: Dr. Jill Morrow, Pennsylvania Office of Mental Retardation Dr. Jim Rimmer, National Center on Physical Activity and Disability |
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Quality Assurance and Self-Directed Services: Who Calls the Shots?-Pelletier (345 K)Self directed approaches to service delivery require significant changes in decision making processes, the allocation of responsibilities, and the determination of who holds the authority for ultimate action. This session will describe the goals and challenges of providing the support necessary to enable people to actually take charge of their lives.Presenters: Sandy Pelletier, Area Agency for Developmental Services of Greater Nashua, Inc. Jean Tuller, Oregon Technical Assistance Corporation |
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Supervisors of Direct Support Professionals-Miller (918 K)
Sherri Larson, Howard Miller, Linda Muchow, and Catherine
Spalla discussed the crucial role direct support
professionals (DSPs) play in enabling consumers to achieve
the quality of life they seek. Supervisors of DSPs are integral
to this process, providing their staff with the training,
support, and guidance they need to successfully acquire the
skills necessary to direct their own supports. This
presentation examined the role supervisors play in
supporting the efforts of consumers and DSPs toward
achieving an enhanced quality of life.
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Listening So People Will Hear You: Obtaining Feedback from Self-Advocates on Quality of Life-Gardner (1,739 K)
The Council on Quality and Leadership has developed an
extensive information base from interviews of people with
developmental disabilities conducted in communities
throughout the country. Jim Gardner, The Council˙s
President and CEO, discussed the potential uses of such
data to drive quality improvement efforts. A similar
approach taken by the Self-Help Network of Kansas
documented the perspectives of people with disabilities in
Kansas. The presenters discussed what has been learned
from the interviews they have conducted and what services
mean to the individuals who receive them.
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Following Core Indicators of Change-George & Lehr (88 K)
The Core Indicators Project (CIP) is supported by NASDDDS through a contract with
the Human Services Research Institute (HSRI), for the purpose of developing
of a set of performance indicators that can be used across states
to assess each state˙s progress on identified outcomes. Sarah Taub,
Olivia Garland, Bob Jones, Janet George, and Connie Lehr discussed
approaches that have been used to integrate CIP results into the overall
quality assurance and improvement activities in participating states.
Problems, successes, and areas for further development were discussed.
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Authority, Risk and Responsibility:
Negotiating Choice-Duval & Finn (21 K)
Natalie Duval and Chester Finn explored the question: To
keep a person safe, do you have to restrict his or her
freedom? This session addressed individual risk contracting
as an approach to maximizing both freedom and safety.
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Minnesota Update (98 K)Tom Cramer, John Jordan, Cindy Ostrowski, and Matt Shoen with the Minnesota Region 10 Quality Assurance Commission (MN Region 10) discussed their respective experiences thus far with a grass roots initiative in Minnesota to improve the quality of supports made available to persons with developmental disabilities. The presenters discussed the history of this initiative and provided an update on the activities of system stakeholders since last year˙s conference in implementing this project.Presenters: Tom Cramer, MN Region 10 John Jordan, MN Region 10 Cindy Ostrowski, MN Region 10 Matt Shoen, MN Region 10 |
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Balancing Risks and Safety-Rose (541 K)No other issue in the field today can influence the outcome of person-centered supports more than the ¬Right to Risk˙. Given the current movement of the service delivery system toward an even less restrictive direction, general liability claims are sure to increase. It will become imperative for providers to have a greater understanding of general liability and how to better protect themselves from financial claims and possible lawsuits. The key to successful outcomes will be largely the result of a competent workforce. By examining ¬case studies˙ this session looked at how recent court cases influence the DD field and impact provider agencies. It also addressed who determines the ability of an individual to accept the responsibility of choice: the direct support professional? the parent or guardian, the clinician?, the individual?, the courts?Presenters: John Rose, Irwin Siegel Agency, Inc. Mike Komoll, Irwin Siegel Agency, Inc. Cathy Ficker Terrill, Ray Graham Association for People with Disabilities |
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Microboards-Golden (1,507 K)Self-directed Support Corporations (SDSCs), a concept based on British Columbia˙s Microboards model but adapted for the United States. Self-directed Support Corporations (SDSCs)are legally developed not-for-profit corporations developed to provide a legal entity to manage the support system for a person with a disability through the establishment of a board of directors, and designed to contract directly with the Home and Community-Based Waiver Funding (Medicaid).Presenters: Jackie Golden, Inclusion Research Institute Liz Obermayer, Self-Advocate |